Archive for July, 2013

Dawn in IM Wisconsin 2011

Dawn in IM Wisconsin 2011

In nearly 2 weeks I will be swimming, biking, and running at the USAT National Sprint Triathlon Championship In Milwaukee, WI for the American Brain Tumor Association.  This will happen nearly 1 week after my last radiation treatment and about 10 weeks after my brain surgery and diagnosis of grade 3 anaplastic (malignant) astrocytoma. My goal is to finish the 750 meter (0.5 mile) swim, 20K (12.4 mile) bike, and 5K (3.1 mile) run even if I have to swim slow, take breaks on the bike, and walk most of the run.  I am doing because I am able and for those with a brain tumor diagnosis that cannot.  I need your support to reach my fundraising goals. My fundraising goal is $2,210. Why $2,210? I have chosen $2,210 because for every 100,000 people in the United States, 221 are living with a brain tumor diagnosis. Please support brain tumor research and patient support. Currently the average life expectancy after diagnosis and treatment for my type of brain cancer is 2-3 years. I expect to live longer. Every cent counts and with your help people with brain tumors can live longer with a better quality of life. To donate click the following link.

http://hope.abta.org/site/TR/TeamBreakthrough/TeamBreakCYO?px=2271412&pg=personal&fr_id=2580

 

“Even when our heart aches, we summon the strength that may be we didn’t know we had, and we carry on, we finish the race.” -President Barack Obama at the Boston Marathon memorial service April 2013

2013 Tour de France

2013 Tour de France

 

Highlights
Continue watching Tour de France. CrossFit scaled WODS continue Karen, Elizabeth, and kettlebell class. Rash an arms continues. Shadow Stoke /Turn Judge for National Junior Disability Championships short course swim meet. Visit with neurooncologist. Returning to work July 22, 2013. Radiation treatments half over. Relay for Life.

More details to come

Hair loss. Scar. Why I wear a hat.

Hair loss. Scar.
Why I wear a hat.

Highlights Continue watching Tour de France. CrossFit scaled WODS continue Karen, Elizabeth, and kettlebell class. Rash an arms continues. Shadow Stoke /Turn Judge for National Junior Disability Championships short course swim meet. Visit with neuro-oncologist. Returning to work July 22, 2013. Radiation treatments half over. Relay for Life.

More details to come

 

WOD Box jumps, jumping pull-ups

WOD= Box jumps, jumping pull-ups


Highlights
Pet bird Rio dies on July 4, 2013
Mowed lawn
Return to CrossFit
New birds Sochi and Ronaldo
Full post in the works

US Soccer

US Soccer

Highlights
Headache Saturday that continue to Sunday morning. Spent Saturday on the couch watching favorite sports on TV: soccer, swimming, cycling. Sunday eve shadow stroke/turn judge my first swim meet.

Ok, just analyzing how unlucky I am to have anaplastic astrocytoma. The incidence of anaplastic astrocytoma is 0.49/100,000 that means about 1,500 people in the US. It is a relatively rare disease. I think more people win the lottery each year. Likewise the breast cancer rate is 123.1/100,000 in the US.

What I am lucky for.
I live down the street from Mayo Clinic and can see it from my house. They have been providing me good care. My tumor was in the left frontal lobe away from critical structures. The visible tumor was completely removed during surgery.
~dmj

rochester fest

Mom and I in disguise at Rochesterfest

Note to self

Note to self

This week I continued to press on. Friday, prior to Rochesterfest, I guy came up to me in radiation from cancer research. He had wanted my permission to donate my tumor to research for genetic testing. No question, of course, so I signed the necessary paperwork. Soon my brain will be sitting in a lab somewhere in the world. My daily WOD includes 45 minute walks at the Rochester Athletic Club with some light weights. One day I did go to Empower class but was stuck using the 9# bar the whole time.  Friday, I walked in a 1 mile race before the Rochesterfest parade then walked in the parade but was exhausted at the end. Unfortunately, I do not think I burned enough calories during these WODS to make up for the corndog, funnel cake, brat, and onion rings that I had at Rochesterfest over the week.  The people at Charlton Desk-R where I get my radiation treatments now know me by name. I do not know if that is a good or bad thing or if it comes with the territory. My blood tests are still relatively stable but the headaches continue.